Victor's Library

$ 20.00

From an early age, Victor has been fascinated by the texture of books. To this day, he loves being read to and simply examining different books.

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Victor Pauca

Victor Pauca is 11 years old. He lives in Winston-Salem, NC, with his mom and dad, his sisters, and the family dogs. Vic is special to his family, and he's very special to us at Resilience, too.

Victor is Resilience Project's first patient who does not have cancer. Read Jake's blog post about why this means so much to our organization.

Instead, Vic lives with another kind of chronic illness - his is a rare genetic disorder called Pitt Hopkins Syndrome. PTHS is caused by a mutation or deletion of a specific gene in chromosome 18. It's characterized by developmental delay, hyperventilation or breath-holding, lack of verbal communication, epilepsy, and gastrointestinal issues.

“I decided to count up on the things he can do rather than down on the things he can’t.”

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“I decided to count up on the things he can do rather than down on the things he can’t.”

Victor attends a school designed to help kids with chronic health impairments, and his family takes great care of him. His older sisters, Sofia and Francesca, especially enjoy helping him with things around the house. Vic loves being outside in nature, playing with tops, swinging, watching comedy, listening to music, and looking at books.

Victor's Library will benefit the Pitt Hopkins Research Foundation, which was co-founded by his parents Theresa and Paúl to raise money to find a cure. Vic was one of the first cases of PTHS diagnosed in North Carolina; it is still unknown how prevalent the disorder is. The genetic link was identified in 2007 and research is still being done to look for a cure.

“I love my son for whom he is. He is funny, handsome, and so curious. He has transformed my life for the better and I am so grateful for that.”

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“I love my son for whom he is. He is funny, handsome, and so curious. He has transformed my life for the better and I am so grateful for that.”

From an early age, Victor has been fascinated by the texture of books. To this day, he loves being read to and simply examining different books.

Profits are split evenly between the Pitt Hopkin’s Research Foundation and resilience gives. The Pitt Hopkins Research Foundation is committed to finding a cure for Pitt Hopkins while resilience gives reinvests proceeds to work with more patients.

Knit from a comfortable blend of cotton and polyester, Victor’s Library are soft and lightweight, great to wear to the office, the classroom, or just around town.

Victor’s Library are available and will remain so until inventory runs out.