Naaman was born on February 28th, 2017 as a healthy baby boy with a head full of hair, big hands, and big feet. Around the time of his first birthday, parents Neil and Nicole began to notice that Naaman was getting hard, lumpy bruises by simply brushing objects. After numerous blood tests (including a white count of 750,000) and a series of long nights at the hospital with a toddler who couldn't eat or drink, Naaman was diagnosed with Philadelphia chromosome-like Acute Lymphoblastic Leukemia (Ph-like ALL), a rare form of ALL that would require a clinical trial for treatment.
Over the past two years of treatment, Naaman often experienced "chemo holds" while waiting for his blood counts to be sufficiently high enough for treatment. He's seen the spectrum of viral and bacterial infections (think C-diff, pneumonia, and many more), battled through liver disease, and completed physical therapy to re-learn how to sit, stand, and walk (and run!).
Now in this third year of treatment, Naaman is tolerating maintenance chemotherapy well! He loves playing with his big sister Nadine, wearing his Captain America costume, and everything penguins. Where his love of penguins came from? "We're not sure what sparked it," says his mom Nicole.
With fewer and fewer ER visits, Naaman and the family have a positive outlook on the future. For the most up to date information on Naaman's journey, please visit the family's web journal, teamnaaman.com.