micah's story

micah's story

micah's story

One October day, parents Marcus and Kim noticed that their eighteen-month-old son Micah’s walk was suddenly wobbly. Two days later, his balance was so bad that Micah ran into a wall. Seriously concerned, the family visited their pediatrician and were quickly escalated to the neurology clinic at Children’s National. Within the week, their world was turned upside down with the discovery of a ping pong ball-sized tumor next to his lung (which was putting pressure on his spine and causing the gait issues). Micah received a dual diagnosis - Ganglia Neuroblastoma and Opsoclonus Myoclonus Syndrome (OMS), an extremely rare neurological disease.

While OMS is a disease that Micah will live with for the rest of his life, his family is grateful that the combination of diseases enabled them to detect Micah’s neuroblastoma while still treatable in Stage I. After a successful tumor resection surgery, an aggressive chemo regimen, and two years of subsequent treatment, Micah is in remission and rang the bell in November, 2020.

Throughout Micah’s long journey, a constant bright spot at each hospital visit was the ritual stop at the Treats and Treasures cart. Each time, Micah would always choose his favorite treat - a lollipop, or as he calls them, “pop pops”. Now four, Micah is upbeat and full of energy, happily trading running laps around the oncology floor with laps around the baseball diamond with his older brother, Matthew.

See Micah’s Lollipop Socks