josie's story

josie's story

josie's story

In December of 2016, while on a family vacation to Disney World, three-year-old Josie began complaining of pain in her leg. After three days of worsening pain leading to her unable to bear weight on her leg, her parents, Jessica and Bill, took Josie to the hospital, where an MRI showed a concerning spot on her pelvic bone. Within two hours they were on a flight back to the Midwest to meet with an oncologist at Lurie Children's Hospital. Three days before Christmas, Josie's family got the news - she was diagnosed with Ewing's sarcoma.

Josie quickly began her chemotherapy regimen and was immediately hit hard by the side effects of chemo. She faced multiple GI problems, including norovirus and C-Diff, and ultimately required six months of nightly IV nutrition to maintain her body weight. Her mom Jessica says, "The scariest moment happened a couple months into treatment when Josie suddenly started throwing up and became unresponsive. The doctors actually called a code and I thought I was losing my baby girl right in front of me." The episode was attributed to a seizure cased by one of the chemo medications.

Despite the scares, Josie was able to ring the bell in October, 2017. Now eight years old and in remission, Josie is a sweet and funny girl with a spunky personality. She loves her dolls and is learning ballet to help improve her mobility. She loves her extended family and co-designed snowman socks to celebrate one of their favorite winter activities - making snowmen!